This is just a small portion of what will be going on at the benefit for the boys!!! Things and prizes are being added daily!!!!!! BENEFIT CONCERT FOR ELI and KADE BURKHART A benefit concert will be held October 26th, 2014 at 12pm to help the family of Eli and Kade Burkhart with medical expenses. The event will be held at the Mt. Zion City Park. Hot dogs and Hamburgers, Drinks and Chips,amazing Homemade Marshmallows! Snow cones, Popcorn, Cotton candy, Face painting and that isnt even the biggest thing!!!!! A BOUNCY HOUSE...... yes a bouncy house!!! Donated from Angela Barrett!!!! All for a small donation. Horse rides, supplied by Mr. Scott McGuire, for the kids can ride --3$. The amazing Jessica Dorr will be set up taking pictures and printing them on site, 4x6 for 5$. There will also be raffles for new Home Depot tools, oil changes, cookies, cakes, and pies and MORE!. Last but not least some awesome music provided by the Christian band Reclaim the Day! If you would like to donate anything to the raffles or food wise please email Courtney Knight at Courtneyknight51@gmail or me, Gahma Teresa Spicer 678-876-5185 the boys mom, Jessica Burkhart @ 770-834-7813 Now for a little about these two preciously amazing little boys!!! Eli and Kade were both born with Epidermolysis Bullosa, known as E.B for short. EB is a very rare genetic condition in which the skin and internal body linings blister at the slightest knock or rub, causing painful, open wounds. The risk of infection is so great that severe cases have to completely bandaged from neck to toe. The worst forms of EB lead to eventual disfigurement, disability and often early death. As the USA does not have anything in place for these patients, most are forced to go without vital medical supplies as well as parents working crazy shifts JUST to cover the extortionate bills each month as their insurance only covers part of the bill. All of this is on top of regular living expenses. No wound care supplies are covered by any insurance and a full bandage change for the typical EB patient is over $100.00 The only treatment for EB is daily wound care and bandaging. The daily routine is a grueling, multi-faceted regimen lasting up to 4 hours in more severe patients. Caregivers, often parents or family members of EB children, must work in conjunction with medical professionals to determine and administer different treatment methods to care for EB wounds. Georgia, Elis home, is the worst state as far as the help they provide for medical supplies. We have to do all we can to change this. Medical care should be a human right in this day and age, especially for young babies with EB. Eli has Junctional Recessive EB with the subtype being mutation 17. On Aug. 12th 2014 Elis mommy and daddy gave birth to a little brother who was also born with EB. We do not know yet the type, but suspect little Kade has the same type as his big brother Eli. At the benefit concert we will have an order form for the bandage material if you would like to order specific things for the boys. Thank you to everyone who is donating and spending time getting the donations!!! NOW LETS SHARE THIS PAGE AND EVENT AND GET THE WORD OUT!!!! God bless!!!
Posted on: Mon, 29 Sep 2014 20:03:39 +0000
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