Tobias Rent update: Resting quietly now. This morning he received two units of blood and his dialysis catheter was removed. He continues to cough due to the irritation in his lungs and respiratory or the nurse comes and suctions the tube and his mouth. I am allowed to suction his mouth as needed, too. The dressing on his chest tube site was changed... OW.... when the tape is pulled off. I take off the compression devices on his legs and rub them with lotion several times a day. He has been running a low grade temp of 99.9 at most and that goes down once I take off the coverings on his legs. Cheryl Lanfear stopped by with a quiche and Austin Kessler came with my special order of a California omelet from Kerbey Lane. OMG it was awesome! I had the quiche for dinner along with a salad Cheryl had dropped off yesterday and it was delicious. Marie M MullingKarl Mulling and the kids came by. Karl visited with Toby and I had a chance to be a NaNa for a few minutes. Discussed Ms. Gs birthday desires and am going to take a break tomorrow and go with her to IKEA to pick out bunk beds as her birthday gift. She is also going to look at James Avery charms as that is my yearly addition for her charm bracelet. Mr. K told me about his school and told me he likes lunch.... me too, buddy, me too... One of the other families family member is not doing well after doing very well yesterday... such a roller coaster of life here.... This evening Henk came by and I asked the nurses to decrease his sedation so he could be more conscious. The reduced the propofol and increased the fentanyl slightly. Henk came by and they had a great visit. Katie Orshaw Katya Orshasky) came by and I got my baby fix with my little Twinkle in the waiting room while she spent time cheering Toby up. We discussed hand massage techniques. Toby and I communicated in our hodge podge manner. Someone had suggested he could text on his phone, or maybe the laptop.... he is so weak that he cant hold his hands up in place to do anything. So I typed three questions which I thought he might be wanting to ask on into word on the laptop in very large font and held it up in front of him. I read them each outloud and asked him to squeeze my hand if he wanted to ask the one I was reading. He squeezed when I read When will I get out of the hospital? I reviewed the necessity of rehab and how important it would be for him to build up his strength. We once again reviewed the timeline which got him to this place and I think he is finally conscious enough to realize the severity of his situation. He began to cry and squeezed my hand. I told him how everyone was keeping track of his progress, how so many people had stopped their lives and come to stay with him, how Marie and Karl had accelerated their journey home to be with him and Marie was with him almost everynight in his room, keeping an eye on her baby brother. It was a long day... a good day... and we hope and pray for tonight and tomorrow to be equally as good. He complained of the chest tube and I asked his nurse, Miney, about increasing his propofol and decreasing the fentanyl to make him more comfortable throughout tonight. The pumps have been adjusted, he has been suctioned and is resting with eyes closed. I moved the ventilator tubing to the side so he can see me in the cot and told him that if the machines alarmed, I was here, that if he awoke, I was here, that someone had been in his room 24/7 everyday since he was admitted, unless we were told to leave for a medical procedure or a bath. I told him how many of you had been loving him from afar and that you all believed in him and we all know that he will get thru this. I told him the sooner he gets the breathing tube out, the better, that he needs to excercise his legs and hands and get his strength back. He began squeezing the stuffed animals and pushing against my hands with his feet. Like I told the doctors, Toby is tough and they have no idea what strong family genes he carries, he can do anything. He understands that he is very lucky. Many thanks.... Im going to sleep and when I awake, my granddaughter will be nine years old! Where did the years go? Thank you all for your support during this difficult time, Im sure we will continue to need it as he continues this journey of recovery.
Posted on: Sat, 11 Oct 2014 04:00:39 +0000
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