Today im almost 3 yrs in remission. My journey w ITP started off in an emergency room w severe heart palpatations. CBC results were alarming to ER doctor and in 3 days when i saw PCP they were even worse. After 3 rounds of IVIg,months of taking 100mg prednisone, 2 bone marrow biopsies and rounds of Rituxan my dr suggested removal of spleen through an open incision. I have a huge scar from sternum left to just above left hip. Recovery was a beast and still i cannot sleep on left side wo pain. I have intestinal adhesions from being under anesthesia for many hours and some days the pain is unbearable. I suffer from tinitus from so much prednisone, neuropathy from so much chemo and overall i still feel like i was hit by a bus daily. I no longer take any man made medication, rather i have opted to go completely natural to deal with the side effects of all the medications and treatment. When asked if i would do it all again...I say YES. WHY?Because today Im a survivor of the most insane rollercoaster rare blood disorder i have ever experienced. Today i dont hold my breath whem i have a CBC, i dont look like a human pin cushion explaining to everyone that im not being beat nor do i have an issue w IV drug abuse. In short ITP is a nightmare from diagnosis to eventual remission. For those still in the fight i say Chin up...you will get there. I know its a huge scary ordeal but you will get there and you too will share your story of the journey to remission. Talk as often as you can, remind people that just bc you dont look sick doesnt mean you arent, ITP for the most part is an unseen illness. I find myself looking people over when they have bruises, looking for purpurra and petichia and warning them to get a CBC w Platelet Differential justbto be sure. All in all i can say im still a little pissed that right smack dab in the middle of my life and career i got sidelined by ITP but Iv met some great folks encountered some amazing support networks and I share more with people, I love more,live more and i really dont sweat the petty stuff or petty people. LIFE is far too short for nonsense. So fight on...be courageous,be bold and PLATELETS UP!!!!
Posted on: Fri, 05 Sep 2014 13:55:07 +0000
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