Tomorrow marks the start of intensive feeding clinic. With that and other appointments we will be at the hospital for hours every day for the next 6 weeks. She has from 1 appointment to three appointments a day. I would be lying if I said I am not totally overwhelmed with all of this. I am however excited at the progress she has made this far with eating and I know she will do wonderful. She also sees the new neurologist from the rare childhood disease center at TGEN tomorrow for her body temp regulation issues. She wasnt accepted into the clinic but he will see her in his office since we already have done the testing. Prayers for good luck and no aspirating so we can continue on our journey of eating! I will update at the end of the week! :D
Posted on: Sun, 11 Jan 2015 17:08:45 +0000