Update Aug. 5th,2014(4 days old): The first 4 days of Chases life have been a blur. From living in multiple different homes to the 4am breast feeding times. After Chase was born he was placed on a Jet ventilator and given surfactant which helped open up our little mans lungs and allow him to breath easy. After 1 day of being on the ventilator the settings were so low they took him off and now he is on a CPAP RAM(helps pressurize his lungs and hold them open) with anywhere from 25 - 35% oxygen. He was originally given 2 lines that went through his umbilical artery and vein to provide nutrients and easy blood draws. His day to day has been pretty consistent besides 1 - 2 spells that happened tonight.(Spells are when his resp. rate and heart rate both drop because of his immature breathing responses. Stimulation by rubbing his feet help him come out of these if he cant on his own.) His white blood cell count has been on the lower end resulting in him receiving antibiotics to ensure no infections are hindering his condition. He did spend about 36 hours under the bili lights to help bring his bilirubin levels down from 8 to under 4. With Chase being so small at birth alot of the machines, gases and fluids he is receiving are in effort to mimic what he would be getting in utero. He continues to lay flat with with minimal movement to help decrease the chance of a brain bleed. With so much monitoring he has alot of buzzers and such going off throughout his day which worries us but the nurses assure us they will let us know if anything is concerning. Chase really likes when mom and dad put their hands around him and make him feel calm and supported, when mom pumps milk in his room, the sponge filled with water to help keep his lips and mouth moist, and especially when his nurses put a little sugar water on the tip of his pacifier!!(he really likes that) He doesnt like being woken up when he is sleeping, diaper changes, O2 and fluid alarms, loud noise, or bright lights. One thing we know for sure is that he will need surgery to fix an issue with where he pees but this wont happen until about 6 months of age. We receive most of our information from the awesome nurses that help Chase everyday, but each day the NICU physician team do rounds starting at 9AM to review the previous day and put a plan together for the current day. What we know now is that his RBC count is lower than we would like and due to the amount of blood draws his body is unable to produce enough to replace what is being taken. This means a blood transfusion and a PICC line are in the near future. This journey will be long and difficult but we trust in God and know that he has a long and detailed plan for our little guy!
Posted on: Wed, 06 Aug 2014 03:50:10 +0000
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