Update Tuesday 6:00pm Today was all about creating a routine. - TopicsExpress



          

Update Tuesday 6:00pm Today was all about creating a routine. Our little family is occupying one hospital room, therefore we have to have a good system in place to get things done. Helping Shelly one minute and then taking care of Rylan the next is a busy combination, but one I love so much. It is such a relief to have both my girls in one room. Shelly spent most of the day in a chair sitting upright. The PT crew told her that it would help her become stronger. They said it takes one week of work to overcome one day of sitting in bed. Thats all she needed to hear, the girl doesnt want her bed now. She is eating really well. Her stomach is still real small, but she is doing a great job of choosing nutrient healthy foods to fill her belly. Not to say that we wont reward the days hard work withs doughnut. Shelly did walk a good bit today. Not just the lap around our pod, but she is now using the walker with my assistance to go back in forth to the bathroom. Shelly has always been a very independent person. I know this is a struggle for her to need help, even if it is from me. OT came by and assisted Shelly in a sponge bath. I can see a big difference from yesterday, she is taking over more of the work while doing simple acts. This is a great sign! Best news of the day, we took a nap! Shelly slept in the chair for about 30 minutes, Rylan and I slept in the bed for a good bit longer. Well, Rylan sleeps all the time, so its not really a far comparison. As Shelly rests, eats, and exercises, I can see glimpse of her normal self. I feel like this is Gods way of keeping me focused and strong for her. He knows my soul. He knows my personality. Its like He just says, look, see that, she will be fine. Some days I need those reminders more than others. One of the doctors explained how her road to recovery would be a lot like a stoke patients, due to the amount of time that she went without sufficient oxygen. That statement really shook me for a second. But now, with time to really absorb that information, it gives me a better plan and better approach. Thats just who I am. I need to know, good news or bad. Just tell me, let me react, let me reflect, then let me get to work. Something funny happened today. It made me think that Shelly was secretly reading my posts on Facebook. When I was getting out of the shower and redressed, she gave a whoop whoop. I actually stopped for a second and looked around. It couldnt of been her? But then I made eye contact with her and she gave me that cute face she does when she bounces her eye brows up and down. We both laughed. She followed that up with, you need to eat, how skinny are you? She is still struggling with the time gap. For her, she went to sleep and woke up. For the rest of us, we struggled, we prayed, we were sick. Its hard to explain to her what I went through during that week. She is obviously noticing the consequences, so I am betting she is starting to grasp the big picture. Right now I got to sneak away for a minute. Her super fun Aunts and cousins came by to visit, so I am going to eat. Alone. This is a good thing. I dont think I spent more than a brief moment alone yet. Its good for me. I have some healing today as well. Our two families have been awesome. They make sure we do not go without anything. Like most young couples, we were not in a position to handle something of this magnitude. Our families have come together and made sure that we survive this in every aspect; physically, mentally, emotionally, and spiritually. We will never be able to repay any of them for their sacrifices. Their love has been phenomenal. As always, thank you for all the messages and support. Most importantly thank you for keeping my family in your prayers. The struggle is unavoidable, but the love we feel during our fight and recovery has made it a blessing. Thank you all for that.
Posted on: Tue, 16 Sep 2014 22:49:37 +0000

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