Uz odobrenje gospodje Irene Cetin, majke oboljele destonjesecne - TopicsExpress

Uz odobrenje gospodje Irene Cetin, majke oboljele destonjesecne bebe u potpunosti kopiramo njeno pismo u nadi da i ostali clanovi mogu pomoci savjetima ili drugim doprinosom Irena Cetin - "nemam ništa protiv objave mog pisma jer svaki eventualni savjet je dobrodošao". "Poštovana, ja sam jedna sluđena majka desetomjesečne bebe kojoj je odmah po rođenju dijagnosticirana hipotonija, ali do dana današnjeg nije otkriven uzročnik iste tj. konkretna dijagnoza. U Sarajevu su uradili sve što od dijagnostike ima u BiH, trenutno smo na pretragama u Zagrebu, ali, sve u svemu, imam osjećaj da neću otkriti šta mu je. čak mi je odmah i rečeno da budem spremna da možda neću nikada ni otkriti. Doktori sumnjaju na raznorazne sindrome, na kongenitalnu distrofiju, na svašta nešto...a zajedničko im je da su im prognoze loše. Jako sam zabrinuta i pomalo izgubljena u mislima kuda, šta i kako dalje. Zato se Vama i javljam....s pitanjem da li imate šta za preporučiti? Kuda ići dalje na pretrage? Ili imate li bilo kakav savjet? Hvala Vam unaprijed. I moja iskrena sućut zbog vašeg gubitka... Irena"

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