[Warning: Sorry for the novel! If you hate me for it, just look at the cute pictures.] Sorry for the lack of updates after my last post! Honestly, there hasnt been too much to share regarding any change in Charlies condition or the plan for him. Essentially, we are just waiting it out and supporting him until he decides he feels better. The idea is that the reason for such high pressures correlates with how poopy (no, really, that was the word used) his chest xray looks. Once his lungs pop open some more, his pressures should come down a lot. Still, his lungs are damaged. This plays into the high pressures, and the high pressures play into everything else. The weird part of all of it is how good Charlie looks. He still is groggy and on high amounts of sedation (slowly being weaned to prevent withdrawals), but in spite of it, he looks good. Smiles a little. Plays a little. Talks a little. It is clear he isnt 100% (and for obvious reasons), but he is certainly better than he was. Ill keep you all updated on the plan for him as we figure it out ourselves. On another note, let me just say how much we appreciate the support from so many. After one of the most emotionally draining weeks I have had in our time here, it is clear God is looking out for us. While we completely fail at personally thanking so many of you for your support during this time, I want to say an enormous thank you to those that have sent us gifts. This is fairly personal, but just this morning, I woke up to a text from my mom telling me to look at the Gofundme page that a family friend set up for us. There are two major expenses that are extra that I have really been praying about: a necessary root canal that I have to have on Monday and have been putting off for months because it costs $1100, and a new breast pump (mine is almost dead) that to pump exclusively for the next year costs between $250-400. I have been stressed about these and avoiding both for a while because of the financial strain that these five months have put on our family. When my mom told me this morning, and I got on, I was floored. There were several donations and two that were specifically $1100 (the exact cost of my root canal) and $400 (the ballpark cost of a pump). All week long I had been praying that God would somehow provide for us in both our basic expenses and in the additional essentials we have. Thank you to all of those who have so freely given. We are so undeserving but so incredibly thankful. I cannot explain enough what a burden this lifts off our shoulders. Additionally, two of my very best friends hopped in a car and came in yesterday just to be with me for the day, because they knew what a crappy week I had. I cannot thank them and the many others that have been there for us practically- like other family and friends who drop whatever they are doing to drive over here and sit with Lincoln for a couple of hours during emergency situations and Charlies worst weeks, or the ones who make us freezer meals and fill our pantry, or the ones that send us meaningful gifts. We appreciate it so much throughout this time. You all- those that support us through both prayer or practical means are probably the reason we arent absolutely crazy at this point. We cannot say thank you enough. Thank you all most of all for praying for Charlie.
Posted on: Sun, 07 Sep 2014 20:10:52 +0000
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