Warning: This is very hard to read, and the video is heartbreaking. If you decide not to read, thats fine, just PLEASE pray for sweet little Sophia, and her parents. Unless God decides to heal Sophia, she is at the end of her battle with Battens. Jamie, and Jacob are Sophias parents. We were blessed to be able to spend some extra time with the three of them this past weekend at the Batten Conference. Jamie, and Jacob wrestled with weather or not to attend the conference. Their doctors told them to go, what they do for Sophia at home could be done at the conference. Im glad they decided to come. Being at the conference reminds all of us that we arent in this battle alone. Everyone there knows exactly what everyone else is going through. As hard as this post is to read, this is the reality of this horrible disease! This is how the story ends....... Ill say it again, and Ill say it until I had no more breath in me......WE NEED A CURE AND WE NEEDED IT YESTERDAY!!!!!
Posted on: Wed, 30 Jul 2014 00:20:59 +0000
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