*Warning this is long! if you are like me and dont like to read small novels posted I understand..I just needed to vent* I try hard I really do to put the mistakes the hospital made that almost stole Olivia behind us. The promises made to us that things would change, that they would use the mistakes they made to improve care, For the past few years they have done a lot to make us feel as though this was happening, then this past year since they moved to the new building no one seams happy. We started seeing mistakes again, minor ones but mistakes that left Olivia having to have repeated test etc We had requested an MRI because Olivia was having severe back pain, the doctor mentioned something about having to add the spine to the MRI req, I mentioned that she always has her spine scanned since the beginning due to areas of concern they had noted in her first MRI when they found the tumor. It was then they told us that a mistake had been made and that for the past few years they had not included her spine, the doctor couldnt explain how it happened. So she has this MRI it was during a time where for a few months she was so sick she couldnt even go to school. We had an appointment with the dr a couple of weeks after the MRI only a few days before the appointment we received a letter that she was going on holidays and would not be able to see us until Sept five months after her MRI (you would think we were in emerge ), she is due for another MRI now and we havent got results from the last one. Originally when I voiced my concerns to an advocate I was told that it wasnt right and the advocate would speak to the Dr.s Nurse practitioner. the Nurse was too busy or something and we would have to wait, The advocates supervisor heard what was going on and contacted the doctors office and we were assured we would hear early this week with the results, well it is Friday and we have heard nothing. I know that 90% are thinking no news is good news. This is not our first Rodeo with LHSC when they found that she had something going on in her thalamus it was under the similar conditions we had not received results and then we find out there is a problem. However they imply that it is in an area that cannot be accessed so knowing about it earlier would not have helped, it is like being in kindergarten. So we follow our hearts that all is fine, I try to put aside my fear of the past and try to have a nice holiday with our family. I know because I have been told that because Olivia is finished with chemo that we should just forget this part of our life but Olivia does not have cancer she has a brain tumor, brain damage and what that means is today is not tomorrow, people wake up and they know their child can brush their teeth, hair make lunch etc. we wake up and see what today is going to bring and thank go it is usually good days, but what kind of a mother would I be if I just forgot she has this because like so many tell us she looks great. Where would she be if I took everyone advice and stopped worrying well honestly she wouldnt be here with us to learn how to ride a bike, make new friends, inspire me the way she does or like now just cuddle with me. We are so lucky to have each other and a few good friends and family that have stuck it out with us even if they think I am crazy. For the record I am not crazy just tired and married to Sam so trust me I deserve a hero biscuit lol. This is why going back to our life ls not possible but waking up and being thankful for what we have and looking forward to helping others and for me the most exciting thing is discovering things about my self I didnt know and the most important thing is doing whatever I can to make sure that things change so other children and families dont have to go through this........Hugs to you! I know you care! How? Because this was so dang long and your read it1!.......
Posted on: Sat, 16 Aug 2014 06:19:43 +0000