We got to the hospital about 3 pm this afternoon and have had exceptional care. We spent about 3 1/2 hours in the emergency room and basically told her entire life story from beginning until now and gave them my binder full of paperwork I have saved. The ER doctor said that he couldnt admit us, that usually only her regular doctors can, but he made a few phone calls to plead our case and we have been admitted. Tomorrow we will see a GI, a neurologist, a speech and occupational therapist and possibly a pulmonologist. On top of that they will do blood work, a swallow study, and change her feeds around. They dont really have many answers for us right now except that everything is pointing to neurological disorders, but thats all we know. Basically we are getting a second opinion on everything. They also weighed her and she has lost 6 oz. in two days. She is back in failure to thrive at 1 percentile. Right now, we dont know how long we will be here, but everything here so far has been amazing as far as the care. I really feel we are in good hands and did the right thing by coming to Atlanta.
Posted on: Fri, 21 Mar 2014 23:25:43 +0000
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