Well Jaqies seizures have been pretty crappy since last night...bummer. I always dread these posts when my little girl isnt too well and I have to ask for extra prayers as I spend the night on edge watching and anticipating Jaqies every move!! (Another seizure just now...in her sleep. Must make like 25 this past hour-if not more!) They are All myoclonic for the most part but coming in clusters of 3-7 jerks every couple minutes. This sucks! The thing that broke my heart and freaked me out the most tonight is the seizure she had 30 minutes ago. It started as a head drop (atonic) then her eyes looked up and to one side and her hands and legs trembled as I held her in my arms. I watched the clock as 2 minutes passed then I ran with her down the hall to grab some rescue meds I havent used in 3 months and she let out a scream that scared me half to death. It was a blood curdling scream and it sounded so painful. She screamed out every five seconds as her hands and legs continued to trembled and huge tears leaked from her eyes. My heart just broke in a million pieces. She has been doing so great...I have no idea whats going on. This is new for her and so scary for me. I cant get the sound of her screams out of my head. Please pray for her to have some peace tonight. And pray for me too- I need more strength to get through this night! Thanks every body
Posted on: Fri, 09 Jan 2015 05:08:43 +0000
Trending Topics
© 2015