Well, John got his feeding tube changed and unchanged today! - TopicsExpress



          

Well, John got his feeding tube changed and unchanged today! After they switched out his current tube to the Mic-key, it turned out that the new one was the wrong size (and they have to order the right size) so they had to put the old one back in and we need to take John back next week to get it changed again. At least John got a trip outside to enjoy the beautiful weather today! Other than that adventure, it was a pretty quiet day. You may wonder why Im using this picture of John and me before the mother-son dance last year. Its because its about the last picture I took of him before the accident. Tomorrow is the anniversary of his accident, so today is the anniversary of our last full day of normal. This day last year was the last day that I got irritated at John for leaving his shoes in the middle of the floor. It was the last day he took off his shoes. It was the last day he teased his dad (Don had texted him at school when the white smoke went up at the Vatican; John was really enjoying giving him a hard time--hey, Dad, I go to a Catholic school; dont you think theyre going to let us know that we have a Pope?). It was the last day he sat on the couch with his dog. It was the last day that he drove me crazy-we ate in the living room that night--sitting sideways in his chair picking at his dinner and leaving half of it scattered on his table, chair, and the floor. (Bosley very much approved of this method!). It was the last day he ate dinner. It was the last time he got on my nerves with his non-stop witty commentary on the tv show we were watching (to be fair to him, a lot of times his comments actually were witty, but sometimes they really, really werent). It was the last time he played xbox, the last time I heard him laugh, the last time I got mad at him for not starting his homework early enough, the last time he said goodnight, the last time he went upstairs. I have to tell you that if I had a time machine and could go back and find the words to say that would keep him off that truck and let us go back to our normal life, I would do it in a heart beat. But I also know that my ways are not Gods ways. Normal is not what He had in mind for us, and His blessings on this new path have been so overwhelming that I cant even begin to describe how much peace and joy we have experienced throughout this whole journey. I cant say that the accident itself was a good thing, but I will say that so very, very many good things came out of the accident that it has become, in my life, a clear and powerful testament to the glory of God and His loving care for all of us. The primary way God has chosen to shower his blessings on our family is by surrounding us with wonderful people who keep us all lifted up with loving thoughts and prayers. God bless you.
Posted on: Fri, 14 Mar 2014 02:57:33 +0000

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