Well it was one of those days.... Buddy just wasnt herself all day. Im praying nothing is coming over her little body because she cannot afford to get sick...last night she seemed like she had a low grade fever but this morning she wasnt warm and today at all so thats good. She has been pale as well....Earlier she didnt look good at all and her stomach was super extended so we hooked her up to the Farrell bag (that is her venting and draining bag) her stomach drained about 400mls within 30 minutes. But whatever is brewing or something better leave as quick as it came! Her stomach did look a little better after draining and venting thank god. I just dont understand how and where all this output is coming from its just another mystery. I guess I can say it wasnt the best day....Im not sure what this week will bring Im not sure when we have to go to CHOP for fluids but Im thinking it will be Tuesday but I could get a call in the morning from chop telling us to come down so we will find out in the AM! We did run most of our errands and had a very low key day filled with games and we did some baking. Well we are going to hit the hay Ill update in the AM. Please keep those prayers coming and also keep Hannahs family in your prayers as well. Hannah you will be missed but you are in a better place baby girl. Fly high Hannahbear! Tomorrow is a new day so Im praying its better than today....This kiddo needs a break she has had a heck of a few weeks! Thanks for all you do for us! We just keep on swimming and fighting this battle one wave at a time! We love you all! Thanks again for all the continued love support and prayers! Have a good night sh a few extra prayers for a goodnight and a better day! Jocelyn you are amazing keep on showing and proving those doctors wrong! I love you to the moon and back! Poor buddy had hardly any energy today :( tomorrow is a new day Im praying for it to be much better than today! We deserve it especially my hero! But she smiles through it all! Your amazing Jocelyn I hope you enjoy the pictures below!
Posted on: Mon, 29 Dec 2014 01:05:25 +0000
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