another heart mom posted this.. I am grateful that ECMO was created and even more happy doctors are getting awards for the use of it but here comes the but.. I look at my son and I see scars the most noticeable ones are the ones on his neck from when he was placed on ECMO He spent 9 days before being placed on the Berlin heart.. as wonderful as these medical devices are they are also scary and when I see pictures of the machines I swear I get post traumatic stress disorder.. I just seen this post and it instantly brings me to tears.. They must have shrunk the machines or maybe I was so scared for my son that they just looked much bigger then. It is so sad to watch your child go through all of this and to be sitting there as a helpless parent. We as parents are suppose to protect our children from harm Heart disease is helpless.. some of the worst images I have of my son is after transplant.. They leave the chest open with a HUGE kinda band aid and you can see there heart beating from the outside of their chest.. I am not sure why I am sharing all of this info but I feel I need an outlet somehow I know I post a lot about this stuff on FB but truth it it helps me to understand and get my feelings out. I do not understand why this happens to small children. They never did anything to anyone and yes I am trying to rely on my faith more these days but I am going to be honest I have my moments when I am conflicted with my faith.. It kills me to know that God would want a child to suffer.. I had a person ( not going to mention names) But a person who once told me my son was the work of the devil because of all he has been through.. This person claims to be a christian I hope she dies honestly I know that sounds mean and ungodly but I am so disgusted by her comments that I could kill her myself. I need to work so hard on putting peoples ignorance to the side but when someone says something like that about a child whom you gave birth too and have watched suffered as a baby until teenage years it does something to you.. I just wish this nightmare would end and my child would be healthy.. Please be grateful for all of your healthy children bc living this life can be hell.
Posted on: Tue, 06 Jan 2015 06:55:12 +0000
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