Ella Lanay Hunt Posts - TopicsExpress

As I lay here wide awake after turning Ella in bed, my mind cant
As I lay here wide awake after turning Ella in bed, my mind cant help but to reflect back to a woman at the pool today. On these trips it is so glarin...

The ebb and flow of living with a medically fragile child is a
The ebb and flow of living with a medically fragile child is a roller coaster I would love to get off of. In all of the highs in our journey, there i...

Whew what a week. It seems like every obstacle to stop the move
Whew what a week. It seems like every obstacle to stop the move was thrown our way. To say its been challenging would sound contrite. Ella has been fi...

Update on Ella. Slow and steady wins the race. Her lungs sounds
Update on Ella. Slow and steady wins the race. Her lungs sounds continue to be junky even after clearing her airway. They are moving her to treatment...

LIVING WITH SMA- Sleep. Honestly sleep for me is a relative term
LIVING WITH SMA- Sleep. Honestly sleep for me is a relative term anymore. For those who KNEW me before I loooovveed my sleep. The first year and 3 ...

SMA Awareness Day 4- What is SMA? Spinal Muscular Atrophy (SMA)
SMA Awareness Day 4- What is SMA? Spinal Muscular Atrophy (SMA) is a motor neuron disease. The motor neurons affect the voluntary muscles that are u...