Hope for Conner Posts - TopicsExpress

What a long day...I waited all morning to hear back from
What a long day...I waited all morning to hear back from cardiologist, finally got ahold of him. He is basically leaving things up to me. He said if I...

UPDATE: Today was a better day. Conner only had about 35 infantile
UPDATE: Today was a better day. Conner only had about 35 infantile spasms. He didnt sleep as much today, which I was happy about! He even moved himsel...

UPDATE: Conner had another bad day again. He had a partial complex
UPDATE: Conner had another bad day again. He had a partial complex seizure right after a cluster of infantile spasms, which freaks me out! im so scare...

It makes us feel so loved when we are asked for an update :)
It makes us feel so loved when we are asked for an update :) Conner is doing okay. We have to go back down on his pump rate to 50ml/hr which means he ...

Update: the night we went to ER all of the hospitals were too full
Update: the night we went to ER all of the hospitals were too full so they were going to send us to LA. Which at the time was impossible for us, and I...