Noahs Hope for Heterotaxy Posts - TopicsExpress

I was hesitant to post publicly about the trip I made yesterday to
I was hesitant to post publicly about the trip I made yesterday to Boston for a meeting with Noahs surgeon, Dr. del Nido. But now that Im here, and th...

Eek! Sorry I didnt update at all yesterday. An amazing friend flew
Eek! Sorry I didnt update at all yesterday. An amazing friend flew in Thursday night to spend time with us, and help get my mind off things.. But was ...

Ugh. What a day. Noah had been on 80 of flow, and not peeing well.
Ugh. What a day. Noah had been on 80 of flow, and not peeing well. So had his chest washed this after, to see if there were any clots pressing against...

Ugh. Pray for Noahs kidneys. He started producing a really dark
Ugh. Pray for Noahs kidneys. He started producing a really dark brown urine earlier today. Then he stopped peeing. After a little bit, we bolused some...

Noah got rid of a lot of fluid in the last 2 days. Not enough, but
Noah got rid of a lot of fluid in the last 2 days. Not enough, but a lot. Were adjusting diuretics down, and lessening the amount of fluid we pull off...

Were weaning Noahs ECMO flow. Hes currently on 130 for flow. Thats
Were weaning Noahs ECMO flow. Hes currently on 130 for flow. Thats A LOT of support. There is question as to whether Noahs shunt may need adjustments,...

Noahs still holding on, but he still has quite the battle ahead of
Noahs still holding on, but he still has quite the battle ahead of him! We got him on ECMO this morning, and despite frequent bolus doses of epinephri...

Apparently 3 steps back wasnt enough. Im pretty sure Noah turned
Apparently 3 steps back wasnt enough. Im pretty sure Noah turned around and ran. He went to the cath lab to coil collaterals. But when they got there...

Noah could really, really use positive thoughts and prayers right
Noah could really, really use positive thoughts and prayers right now. He failed his ECMO wean yesterday. He couldnt maintain his blood pressure with ...

Noah was taken back to the OR a little less than 2 hours ago. I
Noah was taken back to the OR a little less than 2 hours ago. I should be getting an update within the next half hour. I was able to talk to del Nido...