Sophias Journey Posts - TopicsExpress

Despite extensive genetic testing, including Whole Genome Exome
Despite extensive genetic testing, including Whole Genome Exome Sequencing, researchers were never able to find the gene that caused Sophias Batten Di...

Jacob and I are blessed with many beautiful friends, and there are
Jacob and I are blessed with many beautiful friends, and there are none greater than our friends Heidi, Balin, and their daughter Sophia (https://face...

See this little sock? It belongs to Miss Sophia. After cleaning
See this little sock? It belongs to Miss Sophia. After cleaning her room to prepare for Layla, I was feeling particularly sad and even guilty. I stood...

This is Miss Stinky Pants and she is putting mommy and daddy
This is Miss Stinky Pants and she is putting mommy and daddy through it tonight! We finally get her to sleep (after a very, very hard evening) annnndd...

Maybe were crazy, but we keep thinking about a trip with Miss
Maybe were crazy, but we keep thinking about a trip with Miss Sophia for Make A Wish. Of course, her wish is for her but we also want to make memories...

Sophia is still in bed; she has not woken up today. As her mommy,
Sophia is still in bed; she has not woken up today. As her mommy, this makes me sad and scared and worried but I also know that her resting is better ...

Did you know that you can drown in your living room? No pool, bath
Did you know that you can drown in your living room? No pool, bath tub, or pond needed. Its true, I watch Sophia drown a little more every single day....

To the mom/grandma in Illinois that mailed me a letter....how can
To the mom/grandma in Illinois that mailed me a letter....how can I say thank you? Your words touched my heart in such a way, Ill never be the same ag...