3 MORE days!! Did up Dante your $10 yet? Cone on friends and family its ten bucks! I challenge ALL my friends to donate $10 ( yes ONLY $10 ) to an amazing WALK for our little boy! This is the FIRST time I have ever posted about Alex having Hydrocephalous on Facebook. I dont share personal information with the public because it can often be misunderstood so please if you have any questions PM me. When Alex was born his brain was Bleeding, he had a type 2 bleed on the left And a type 3 bleed on the right ( to clarify the worst number is a 4) the bleed had caused Alex to have something called hydrocephalous (we call it hydro for short) a condition in which too much cerebrospinal fluid builds up in the brain’s ventricles, in Alexs case this is what caused his brain to Bleed. The doctors told us he might not ever walk or talk or function like a normal kid. After 3 weeks in the Vail Nicu he was Helicoptered Flight For Life to Denver. He sat in the Nicu in Denver for a month waiting for Brain Surgery. At 7 weeks old on April 4, 2013 Alex had brain Surgery, just take a moment and think about how scary it is for your new born baby boy to be taken out of your arms to undergo brain surgery. I remember the nurse saying to me When ever your ready we will take him. I looked at her in Tears of FEAR and said lady I will NEVER ever be ready for you to take him it still and always will bring tears to my eyes. Alex has a VP shunt behind his right ear. People say its not brain surgery well this is not true for our family. It IS brain surgery f Alex. At any point in time his shunt can stop working and with in a few hours he needs surgery or we dont have an Alex anymore. This is the resign we moved to Denver we wanted to be closer to amazing doctors. Some people say the day their children were born was the best day of their life. April 7th 2013 was the very best day of my life. It was the day that we took BOTH OUR babies home, the day that the doors of the Nicu (intensive HELL) closed behind us. I truly would have lost my mind if it were not for our AMAZING Nicu nurses in the vail hospital....You know who you are! Alex had an appointment last week with his Brain Doctor, Doctor O. We love her! Every time we see her she tells us our child is normal. Alex is a functioning normal walking and talking 18 month old boy. People say oh twins you must have your hands full but they have no idea how lucky we are. Im not telling you our story for sympathy and attention. I am to telling you our story because Im learning to accept it all, its been a roller coaster learning to live as a hydro mom I also would love to see our family and friends donate to the Hydrocephalous Association. This weekend we WALK to rase money and awareness. Follow the link to donate to our team also I made plenty of team shirts if anyone would like to come WALK with us. hawalk.kintera.org/faf/search/searchTeamPart.asp?ievent=1098277&lis=1&kntae1098277=D8007A464E9A47C8A0C690B3F655260A&team=5857049
Posted on: Fri, 29 Aug 2014 02:57:09 +0000
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