Ansley in the Hospital 10/12/14. By Cassie Smith — 3 hours ago I havent written in a long time because honestly Ansley has had more crummy days than happy days. She was admitted in the hospital yesterday for neutropenia. She also has mucusitis in her throat which is quite painful and makes it too difficult for her to eat. It is incredibly frustrating because we are already struggling with her weight loss. She is very cautious about eating because she scared she will throw up. Well, because she does throw up. We are lucky if she can go 2 days in a row without throwing up. She is on every possible medication you can imagine. Now on top of everything else she has sores in her throat! No child should EVER have to endure this crap. We are lucky if we can get in 2 hours of school a week. She tried on Friday and the teacher came out and said she was falling asleep. She is on too many narcotics to be learning anything. It breaks my heart that she is so far behind all other children her age when before she got sick she was ahead. I know what everyone that is reading this is thinking: just concentrate on getting her better and dont worry about the rest, right? Well as any mother knows, mothers have enough room to worry about every aspect of our childrens lives. No matter how big or small. Plus I have so much faith that she will be better and back at MES, we have to think about her returning to the normal world again. Anyway, her ANC has been 100 for 2 days which is better than zero. She had to receive platelets again (third time this month we found out she is allergic to certain platelets. She had a very severe reaction the last two times she got them. So now she received platelets that have been specially washed for her. Once again, St. Jude is incredible. On the up side, she lost her first tooth! Shes super cute without it:) she lost all of her hair again. She super cute without it too!!! She doesnt think so, and she was pretty upset again but not quite as upset as the first time. My mother & Lacy & AA were riding in the car with us and the windows were down a bit & she was leaned against the window looking very peaceful and this is what she said: I love it when my fuzz blows in the wind. So hopefully we break out of here within the next couple of days. She has to be fever free for 48 hours and her ANC needs to be up to at least 500. Oh & she is scheduled to get her trach out on 10/21 IF all goes as planned! Thats a HUGE win for her! Thank you for the love & continued prayers and support!!!!
Posted on: Mon, 13 Oct 2014 02:17:58 +0000
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