Byron had a sleep study last night. He went an hour or two with the trach cap off (the little red cap on his trach) and the rest of the night it was on. He did have some sleep apnea but less than the last sleep study. Last night around 2:30-7 he had c-pap on to help with the sleep apnea. Our hope is that it helped enough to have the doctors give us the ok to have the trach removed even if he needs to have c-pap at night. On another interesting note I have had the same bible story/scripture come to me 3 times this week Mark 2:1-12. The story of Jesus forgiving the sins of the paralyzed man and curing him of his paralysis. First it was in our 3rd grade religion book, then it was the gospel at church, and finally this morning I saw that Son of God was on Netflix and it is there as well. DW Auto will be fixing Byrons chair in the morning. We are excited that he will have a button on his head array that will allow him to turn his chair on and off by himself. I will also be calling Restorive Therapies to check on delivery date for Byrons FES bike. This bike exactly like the one he used at Project Walk this summer. We are excited to be working with it. We are also very, very grateful to the Angels that made the bike possible to us!! 1 Thessalonians 5:18 18 give thanks in all circumstances; for this is the will of God in Christ Jesus for you.
Posted on: Sun, 18 Jan 2015 21:15:18 +0000
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