#CTVNationalNews - Sunday, April 20, 11:00 pm est schedule: - TopicsExpress

#CTVNationalNews - Sunday, April 20, 11:00 pm est schedule: Bringing awareness about difficult to diagnose, treat and care for #orphandiseases with a report on #PosturaOrthostaticTachycardiaSyndrome (#POTS). Brittany and Justin, two of the ILC teens joined #DrJuanCamiloGuzman, MD, MSc, FRCPC, General Internal Medicine, Syncope and Autonomic Disorders, Health Research Methodology of #HamiltonHealthSciences to speak about the critical need for better understanding. Dr. Guzman is co-Chair of the #ILC Difficult to Diagnose Disease Program for #EhlersDanlosSyndrome (#EDS) were POTS and #Dysautonomia, #MastCell including #chronicpain are often considered co-morbid conditions. Thank you Dr. Guzman, Brittanys Fight For Quality of Life and Justin for raising awareness and giving hope! Presentation below of Dr. Guzmans presentation at the ILCs Scientific Workshop 2013. CTV Post to follow. youtube/watch?v=R2YZAHp2Emg&feature=youtu.be

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