Cayden was born in December 2007, via C section, with no apparent health concerns. As the days, weeks and months passed, his motor skills markers were delayed. At 15 months, mom took him to the pediatrician, concerned that he wasn’t walking … saying “he has a look in his eyes like he wants to walk, but his mind doesn’t communicate with his body.” She was told that he would be a late walker, and at 19 months he started walking. History repeated itself with regard to his speech, and this pattern of delays and specialist visits continued as his list of diagnoses grew to include Medically Fragile, Failure to Thrive, Rumination Syndrome, Nocturnal Gran Mal Seizures, Hypotonia, Ataxia, Cortically Visually Impaired and Autism. Earlier this year, Cayden took his third miracle flight to Childrens Hospital Los Angeles for genetic testing. Mom told us she received the results just a couple weeks ago. “The test was negative ... This means that his disease hasnt been discovered yet ... It continues to aptly be named Cayden Syndrome … he is still my gift,” mom said. Hang in there Cayden and mom. You’ve got a lot of people sending their thoughts and prayers. Cayden is the Miracle Flights for Kids’ special guest at this Saturday’s Project Dinner Table event. Unfortunately, he is not feeling up to making a personal appearance (mom graciously agreed to represent him). If you’re in the Las Vegas area Saturday, and want to show your support of Cayden and meet his mom, please consider joining us at this special dinner. projectdinnertable/reservations/non-members/
Posted on: Thu, 11 Sep 2014 16:27:48 +0000