Dear Those of you who nominated Andy (who isnt even on FB) and myself (I was nominated twice) to do this Ice Bucket Challenge... Thank you for thinking of us in your process to spread ALS awareness :) Moments before I received the FB tags, I had mentioned to Andy that I had a feeling it was coming our way (or at least mine, as I previously mentioned he is not on FB) because I noticed more and more people doing it a little closer to home, have you, than I had been seeing. Suddenly this wasnt just obnoxiously flooding my newsfeed but now is knocking on our door. I think its great that something as silly as wasting water and money on ice has boosted awareness and financial status of research for this disease because this disease is FAR from silly! While getting engulfed and sucked in to these videos I found myself wondering... How many of these people are actually donating to this cause and not just wasting water, or getting injured trying to waste water, or are psyching you out and tossing empty buckets over their heads to prove a spiteful point? Did you guys? (Referring to who nominated us) I read an article saying that the dumping of ice water on yourself is supposed to be punishment for NOT donating. Yet of course FB takes it to a whole new level of crazy as always with the viral videos so people start to get confused why theyre doing this (as theyre doing it, naturally). Granted, all these videos, as ridiculous as I or Andy may think they are, serve a purpose still. Even if you or these people arent donating, yours or their videos may be seen by someone who will. Which is AWESOME. Thats kinda what they need. Money. For research. Not for ice. So heres where we burst your bubble and tell you you wont be getting a video of us. Instead well donate (because wed look like complete douches if we both refused dumping ice water AND donating at this point) and just mention some fun facts about Lou Gherigs disease because Im thinking a lot of people have no idea what it is... or very little... Fun fact #1: There is no cure. Hence the need for money for research. Fun fact #2: over 30,000 people worldwide have the disease. This means well be 30,000 people less in the next 2-5yrs. (Obviously new babies will help balance the numbers out) Fun fact #3: refer to #2... They have 2-5 yrs to live, if you can call it that, from the time of diagnosis. Fun fact #4: Ice water has NOTHING to do with this disease. Fun fact #5: This disease eats away at your nerves but it leaves the brain fully functioning. So basically you can become a vegetable and be able to do nothing about it and still be able to register the world living around you. Fun fact #6: Theres a treatment out there right now that sort of slows the disease down. Thats pretty cool if your body still functions and you dont need a complete stranger working at a facility to sponge bath you or feed you. But if youve already started degenerating, thats even longer you have that you cant tell them how much you hate that perfume they wear or dislike the peas they purée and feed you through a tube. Yeah... Pretty awesome treatment. Fun fact #7: ALS stands for Amyotrophic Lateral Sclerosis. In Greek, A means no, myo means muscles, and trophic refers to nourishment. No Muscle Nourishment. So thats it for my fun facts, cue the reading rainbow the more you know, and just remember this... There is absolutely NOTHING standing in anyones way when donating to a charity at their own submission except THEMSELVES. You dont need a viral video, or ice to conform you. If you wanna do it, then just do it. The end. ^-^ Ps - I nominate no one. If youre gonna donate, youll do it, but Im not putting anyone on the spot to do so.
Posted on: Fri, 22 Aug 2014 05:36:52 +0000
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