Dear friends! Many of you have funded my fundraiser for my and my daughters treatment youcaring/vtimof . I and my daughter are really thankful for your help! Unfortunately we were not able to go to Moscow for treatment but my daughter got treatment in St Petersburg in the clinic of the State Pediatric Medical University. Here is the report from the clinic (The documents are in Russian) : vtimof.narod.ru/01.jpg vtimof.narod.ru/02.jpg vtimof.narod.ru/03_1.jpg My daughter is feeling better now! She was diagnosed with systemic scleroderma in 2013. The disease is really hard and life-threatening. Here is a few facts about the disease: It is characterized by thickening of the skin caused by accumulation of collagen, and by injuries to the smallest arteries. Survival is determined by the severity of visceral disease. Prognosis is difficult to predict until the disease differentiates into recognizable subsets. Patients with limited cutaneous scleroderma have a good prognosis, with 10-year survival of 75%, although < 10% develop pulmonary arterial hypertension after 10 to 20 years. Patients with diffuse cutaneous scleroderma have a 10-year survival of 55%. Death is most often from pulmonary, heart and kidney involvement, although survival has greatly improved with effective treatment for kidney failure. Read more about the disease at wikipedia: en.wikipedia.org/wiki/Systemic_scleroderma The doctors were able to stop the fast progression of the disease for my daughter but from now on she has to get treatment at hospital every half a year. We would like to thank you again for your help! I also would like ask you to pray for my daughters health. Her name is Alexandra and he was baptised in the Russian Orthodox Church. P.S. I was not able to get treatment for myself and still suffering from pain...
Posted on: Fri, 16 Jan 2015 17:46:45 +0000
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