Doernbecher Childrens Hospital called last night and said we - TopicsExpress

Doernbecher Childrens Hospital called last night and said we should get a call Monday or Tuesday to set an appointment up for Stryder. I dont know what his pulmonary results mean but I can tell you what the report said, not what it means: Ventilatory restriction to exercise Absent ventilatory reserve Stable end tidal CO2 in late exercise Failure to increase end tidal oxygen with submaxal exercise Depressed tidal volume with maximal exercise Failure to reach a respiratory exchange ratio of 1.1 There were times with his O2 levels were below normal, but they bounced back quickly so they said it is likely a test concern and not hypoxemia, but this is what happens at home and at the Drs other times, so Im sure it was accurate and just not normal for them to see. It will be discussed with the doctors at Doernbecher. I am curious to know if there are others with connective tissue disorders and lung problems similar. Are they related in some way? I have no idea what any of this means and hope that its an easy fix with some simple medications and not having to travel the 3-4 hours over the mountain a lot. Whatever it all means, we will deal with it just as we have dealt with everything else: with a BIG smile!

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