El presidente de la Federación Española de Enfermedades Raras - TopicsExpress

El presidente de la Federación Española de Enfermedades Raras (FEDER), Juan Carrión, ha urgido al Ministerio de Sanidad a combatir las "desigualdades" en la valoración y el reconocimiento de los grados de discapacidad entre las distintas comunidades autónomas. Según la organización, se producen "valoraciones muy desiguales en personas con diagnóstico y manifestaciones clínicas muy similares".

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