Gary is slowly improving. After a wonderful completely seizure free Saturday, he had 2 on Sunday & about 15 today. Its still a great improvement from the past 6 months. We are changing his meds again tonight so fingers crossed for tomorrow. We think todays seizures are from him only having 4 hours sleep last night, the party animal stayed up past 2 am & woke again at 6. Its really difficult to get him into any sleeping pattern while his meds are still being changed every three days & hes out of his home environment. The doctors are still happy with his progress & they have a very detailed plan for the next couple of meds to try. The MRI didnt go ahead today, they are trying to get a fancy MRI test done here in a few months for the first time for Westmead if the radiographers can work it out. We may still be heading down to Melbourne for further testing & a second opinion sometime in the near future. The doctors are having a teleconference next week regarding our little man. We are all missing home but we are so thankful that we have such a wonderful medical team who cares for our son so much.
Posted on: Mon, 22 Sep 2014 12:19:15 +0000
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