Hello Family & Friends! It’s that time of year, again! The 5th annual Team Hope Walk on Saturday, July 20 th, in Twinsburg. This is an especially exciting year. It’s the first time Jessie and Bryce will walk with my family on “Team Jean Year 4,” a team created in honor of my mom, who lost her fight with Huntington’s Disease 11 years ago. For those of you who aren’t familiar with “Team Jean,” it has a proud and storied past. Last year, “Team Jean Year 3” raised the most money out of all the teams in Northeast Ohio for HD research. To kick off that walk, which coincided with the 10-year anniversary of my mom’s death, my dad shared memories of her and our family’s experiences with the disease, and his story was even shared in a local newspaper. This year, we will once again proudly walk in honor of my mom. We also walk to celebrate: Recently, Jess learned she does not have the HD gene! We can’t even begin to describe what this means to me, Jess, Bryce and my family. ... It’s the world. Undergoing genetic testing is the only way to know for sure whether you will develop HD one day or not. It’s a huge decision for everyone involved - and a lot of time, waiting, planning and stress. As you can imagine, learning Jess doesn’t have the HD gene is a huge relief. But, still, many of the people we know and love do have it, and they have long, brave roads ahead. We continue to fight for them and their families every day because - as we’ve learned - HD is a path that no one can - or should - travel alone. It’s up to all of us to find a cure and end HD. Please consider joining me and our family in our fight. You can do this by walking with us on July 20. (We would love to have as many people as possible walk on “Team Jean Year 4”) or you can donate to our team. Here’s how you do both: • Click on this link firstgiving/fundraiser/mickey-larosa/thw?mid=J4UeAA2 • If you cannot participate in the walk and would like to donate, click on the green donate button • If you plan to walk, click on the event tab in the middle of the page, then scroll to the bottom and click ‘learn more’. On the next page click "join now", from there you can enter your personal information. Make sure that you join Team Jean-Year 4. Anything you are able to give is sincerely appreciated. Raising money for research is the only way we will find a cure. We thank you in advance for your help and support. And last, in May, Jessie’s story was featured as part of “Faces of HD,” an awareness campaign by the Huntington’s Disease Society of America during HD awareness month. A hard copy of the story was also featured at the annual HD convention held last weekend. We would love it if you checked it out. You can see it here: hdsa.org/about/faces-of-hd/meet-jesso.html Thank you, again, for your help, love and support. Please consider sharing this message with your other friends and family to help us continue to raise awareness for HD. Love, Lauren MICKEY
Posted on: Thu, 27 Jun 2013 19:55:53 +0000
Trending Topics
Recently Viewed Topics
© 2015