Hello Team Bridgette! My sincerest apologies for being away from support page for a while. But have no fear I am going to catch you all up right now... Since miss bridgette has nodded off on me... I will update via phone one handed! So forgive the typos... After our final hospital chemo we all enjoyed two full weeks without doctor visits and clinic.... It was amazing. We got to pretend like we were a normal family... Or as close to normal as our crazy family can be. Sister and brother got to play and after. The angel game... They got special surprises from their very special supporter.... All. Sorts of angels gear a super cozy blanket they love to fight over and bridgette got an even more special gift. An American girl baby doll... She was in love at first sight. Since Christmas last year she has been asking for one... But as most of you know... They are on the pricy side. She was so excited and loves that baby so much... She feeds her and changes her... She is a pretty good mommy! It is still so hard for me to accept gifts for bridgette because I have always felt like I was burdening people.... But it made my heart so happy to see the pure joy on her face. And what kind if person would I be if I didnt share this amazing soul with the world? Shortly after that Bridgette and brother received their end of a roadmap/round if chemo gift.... A substantially larger than we thought when we purchased it barbie house. Brother and bridgette have a blast playing barbies... And it makes my heart happy to see them enjoying each other. Speaking of roadmaps... We learned at clinic at the end of this one (roughly 60 days) Bridgette will be in maintance.... Less frequent clinic visits and less harsh chemo.... As long as her numbers stay good... She will continue on maintance till the end of her treatment: 07/2016 Thank God for keeping her in his hands... I can see the light at the end of the tunnel. Yes its still scarey... But... I am so looking forward to having more time to enjoy her... And less time running around filling her with scarey medicine. Those two weeks... I almost forgot bridgette was sick... I think we all did. Which made having to go back to clinic this past Monday all that much harder. Daddy took some time off to be with us as bridgette refused to go without him... And it was nice to know he could be there thanks to fmla. It was a rough day... She had spinal tap and then got the new chemo nick named awful things... But I just call it red crap. Let me tell you.... Red crap... Takes it out if her. She started high dose steroids same day.... She was crazy and barely slept.... But once the chemo. Kicked in... (usually a day or two for this one ) she quite literally slept off and one for an entire day and night. But each day woken up looking and feeling better. We have to go to clinic every other day to the the $13,000.00 shots that replace the chemo she is allergic to; which sucks. But... At least we have insurance.... Even if we dont qualify for any other assistance in her medical expenses. Daddy ended up taking her solo for her first one this course... And that was hard on everyone. Daddy is amazing.... Dont get me wrong. But as mommy I try to shield him from the hard things.... But him going was a break mommy needed (plus I had no coverage at day care so couldnt have gone), and... It was a dose of the reality I have kept hidden all this time. I felt a sense of relief that I was not alone in carrying the weight of clinic.... But on the same note my heart hurt... I could see in daddies eyes.... It was a rough and hard day. Bridgette is so lucky to have an amazing daddy..... And so are Brody and I. Taking her steroids was making her very sick because she chews them... Grooossss. But I am. Happy to say she is mastered the pill swallow... And as an incentive to try to keep the road rage battles to a minimum she has her own treasure bag... And if she takes all her medicine without yelling, screaming, spitting or fighting mommy and daddy she gets one thing out of bag. We started this today and WOW medicine time was easier.... Now I just need to stock up on those Lil foil bags if ponies and littlest pet shop and of course the Lil baskets of shopkins and there can be a little less stubborn in the mora house. ☺ We go back to clinic tomorrow for the red crap and one other iv chemo as well as her $13,000 shots (one dose two shots simultaneously.... She is tough) the last shot she said she was scared... I told her its OK to be scared... But you should be proud of yourself for doing it even though you were scared.... Her response.... I is So please keep us in your prayers as we start another week of clinic visits. Mommy is busy baking cookies for chemo and donating to worthy causes as well like Gobo..... Google him... Or fb search. Amazing kid... Amazing story. Until our next update... Which hopefully is sooner rather than later... Cause that will mean bridgette is recovering well.... Hugs from all of us to you.
Posted on: Mon, 29 Sep 2014 05:09:39 +0000
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