Hello there. I have a special needs child Im trying to support parents and children who have no idea where to start. Now this is meant to help inspire and give hope to other parents out there. Please know that it is meaning of this. Checklist one should have if they are expecting or find they have been given the challenging blessing of a special needs child. Consider having your baby at a hospital with a new navel intensive care unit. That way all the doctors you need to run all those tests are already there and they can get you signed up for a lot of these programs so you dont have to go chasing them around they come to you they come to your home they call you and so its all taken care of thats what I did with my son that was just born. #1 start getting copies of any Dr. reports. #2 Once baby is born or diagnosis is found take supporting documentation to: State agencies that help EARLY INTERVENTION DDD SOCIAL SECURITY AZLONG TERM CARE ... #3 Take documentation and any images to any appointments always. Make and take your own copies to give new drs right away if you can. #4 Phoenix Childrens Cordons and CRS are places in Arizona that you will need a Neuro surgeon, neurologist, Geneticist , a Gastrointestinal Specialist , Ear Nose and throat Dr. #5. Therapies for now and the future if needed will start with developmental , speech /feeding therapy, Occupational Therapy, Physical therapy . #6 Get yourself signed up to get extra help! I use Affinity Family Care. These places provide respite habillitation and attendant care. Youll need it its free sign up! #7Get some support ! Friends family loved ones your church other parents going through same thing . theyre out there... Im sure theres variations of this depending on where you live but this will get the ball rolling. Just remember we gotta fight for these kids. God blessed US with them and WE have to do our best as with any child. Take care and God bless I hope someone finds this helpful. Feel free to contact me if you want . elyseforshee@gmail or fb
Posted on: Mon, 24 Nov 2014 03:11:35 +0000
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