Heres a tough one, what do these rare disease non-profits have in - TopicsExpress

Heres a tough one, what do these rare disease non-profits have in common: AliveAndKickn Amyloidosis Support Groups Inc. - ASG Association for Glycogen Storage Disease - AGSD Beautiful You MRKH Foundation - BYMRKH Bridge the Gap - SYNGAP Education and Research Foundation Castlemans Awareness & Research Effort / Castleman Disease Collaborative Network - CARE /CDCN Cohen Syndrome Association Congenitial Central Hypoventilation Syndrome - CCHS Costello Syndrome Family Network Cure Sanfilippo Foundation cureCADASIL Association CureDuchenne ECD Global Alliance Fibromuscular Dysplasia Society of America (FMDSA) FPIES Foundation Global Genes - Allies in Rare Disease Harmony 4 Hope Hope 4 Hunter International Foundation for CDKL5 Research - IFCR IPPF Jonahs Just Begun-JJB Little Miss Hannah Foundation MdDS Balance Disorder Foundation Moebius Syndrome Foundation National Ataxia Foundation Noonan Syndrome Foundation Osteopetrosis Society Inc. - OPETS Parent Project Muscular Dystrophy PCDH19 Alliance Pitt Hopkins Research Foundation Pituitary Network Association Prader-Willi Association of Tennessee Radinsky Fund Reagans Reach Relapsing Polychondritis Awareness and Support Foundation, Inc. - RPASF Save Babies Through Screening Foundation - SBTS Snappin Ministries Support Organization for Trisomy 18, 13 and Related Disorders - SOFT The Foundation for Prader-Willi Research (FPWR) The John Estrella Foundation for Cancer Research - JEFCR The MAGIC Foundation (Major Aspects of Growth In Children) The Mastocytosis Society The Snyder-Robinson Foundation The United Leukodystrophy Foundation ULF Trisomy 18 Foundation Turner Syndrome Global Alliance Uplifting Athletes Williams Syndrome Association Williams Syndrome Changing Lives Foundation XLH Network

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