Hey friends! Im going to post some pictures of Jaysons - TopicsExpress



          

Hey friends! Im going to post some pictures of Jaysons distractors and incision in the comments of this post. If you get queasy with medical stuff, you will probably not want to look. If you are curious or interested in seeing how things are now and how they will change over the upcoming months, check them out. Although some of you may be thinking Oh, thats not too bad for my sake, please avoid saying it. To this mom, Jaysons mom, these distractors, the swelling, and the incision are all awful. I prepared myself with pictures and others stories for this surgery. No images I saw nor the descriptions I heard could prepare me for what I saw in my OWN childs head. It may not seem awful to you, but I nearly lost consciousness as they removed the dressings from my sons head. My distress stemmed from many things-- my child was completely and totally miserable this morning. His swelling had gotten to a concerning level. We just spent 40 minutes holding him down while he screamed while cathing him when the plastic surgeon walked in to take off the dressings. I didnt have time to recover from the first trauma before we transitioned into the next. I do very very poorly with blood and bodily fluids. I had decided last night that I could not watch as they removed the bloody dressings and pulled the head blood drain. I was going to let Mike help with it all, and I would either be on the other side of the room or just outside to avoid losing consciousness. Well, I had Jayson on my lap still comforting him from the cath when the cranio surgeon walked in. He just started removing them with Jayson on my lap. He didnt ask me if I was okay to help, nor did he prepare us for what we would see. Im sure I could have interrupted him, but I was trying to be strong for Jayson. The room filled with a strong smell of blood and iodine as he removed the bandages. I saw lots of gauze sopped with my sons blood. I held my fussing, hurting son down as the red bandages were unwrapped inches from my face. As the bandages were peeled off the wound, new blood started to appear along the incision line. The surgeon wasnt prepared with any gauze, so Mike grabbed ours and I held it to Js head in two areas where he was bleeding. The blood from the drain removal squirted all over me and Jayson, and I was responsible for holding the gauze to his head with pressure and then taping it on over the drain site. I did not know at this time that the swelling nearly immediately started improving in his face. I didnt see his face at all because he was in my lap. From the front he looked GREAT! But at that time, All I had in front of me was the largest incision Ive ever seen, dried and wet blood all over his head, and these two large goose-egg type abscesses RIGHT in front of my eyes. Combine the smell of fresh and dried blood with my crying baby grabbing at his head and it was more than I could bear. So please, avoid saying Its not that bad. It may seem comforting, but it makes me feel defensive. No one could have any idea how bad it really was unless youve been there yourself. Jayse is doing MUCH better now, and I am doing great, so long as I dont look at the back of his head. :) Things will be okay; I am very very grateful; but things are hard and will continue to be difficult for the next couple of months. As always, thank you all for your love and support
Posted on: Sun, 16 Nov 2014 02:16:51 +0000

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