I am not an admin, but I felt like this needed to be said. Catherine Dolan if this needs to be removed, please let me know...Ill just feel better once its said and done. While posting on this group please remember a few common courtsys. 1) How people get psoriasis is different for each person. Some have a hereditary gene, some get it when they get sick later in life, some get it due to an accident where they broke an arm, some get it when theyre introduced to a certain food. Just because you got it because you started consuming dairy/meat or because of an accident doesnt mean everyone else did. Be considerate that some of us were born with it, while others are in their fifties and still new to it. 2) How you handle your psoriasis is not going to work for every person with psoriasis. There are multiple treatments that help multiple people, whether it is diet, exericse, losing weight, allergy meds, avoiding stress, the sun, the cold, salt water, OTC, or biological medications. These do not all work for the same person, and sometimes none of them work. Please do not post things like This is the cure, if you dont do it your stupid. type posts. 3) Psoriasis (according to the psoriasis.org website) is an autoimmune disease that causes raised, red, scaly patches to appear on the skin. This means something in your body is causing your immune system to attack your skin (or joints if you have psoriatic arthritis as well). 4) Everyone who has psoriasis is suffering in some form of way. It could be minor, a small patch thats itching on the back of their shoulder, or someone can be covered from head to toe with severe psoriasis. It can be inverse where no one sees it but its painful when the skin rips, or guttate speckled across someones back and legs. Each of us are or have been suffering, no matter how much money, how much medication, how much coverage we have. This group is meant to be a place for us to go to seek like-minded individuals that understand the pain, not attack each other because its not as bad as someone else. 5) Please. Please. PLEASE, be careful of how you word things. Since we have suffered some of us are very sensitive to the way things are worded. Ive noticed a lot (and I mean A LOT) of posts come off as attacks to other people, that people are wrong or stupid for not understanding what it is that cured you, but not them. People are clearly not doing the treatment well enough or are doing something wrong. No! Stop. Attacking people doesnt help make psoriasis go away, if anything youre making it worse by raising the stress levels. I have had psoriasis my entire life. Born with it. Diagnosed at 2, diagnosed with PSA at 13. Im 26 now. I have guttatte, I have plaque, and I have inverse. Ive only been in this group for a month or two, but believe me when I say I have tried everything. Believe me when I say that my problem is not from food, my problem is not from an allergy, my problem is hereditary FOR ME. IN MY situation I have to be on biologicals to help lessen the pain. I know they have side effects, and it is my choice, no one elses that I am using them. Just like I know that food helps other people and its their choice to be on special diets becuase it helps them. I know suffering, just like I know you know suffering. We have all hurt. And I wish there was something that could be done to stop it but right now there isnt. So why...why are we making it more difficult on ourselves by attacking and hurting each other more? This group is helpful, but its stressful sometimes and its sad that in the course of a month or two I have already considered leaving three or four times because of people who arent thinking before the post. Sorry for the long post.
Posted on: Fri, 07 Nov 2014 20:59:12 +0000
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