I dont really no what to wright here or how to put it. Or even if I should announce it or not but allot of you have been inboxing me regarding Hermione genetics results. Meems has been diagnosed with MEC 2P Dupliction Syndrome. This is a completely separate diagnosis to her brain damage and autism, she is simply unfortunate to have all three. The syndrome is mostly prevalent in males, only five other females are known of throughout the world to have this diagnosis; therefore, there is very little information/research/study about it. This is not hereditary; however, there could be a remote chance of me and Lance having a child with the same if we had other children together. The male prognosis is not very encouraging, 50% of those recorded died before the age of 25. We just hope and pray this is not the same re: Hermione. I dont no enough about this as its so rare in girls so even the medical professionals dont no enough to tell me the answers to the questions I have. The last two day have been hard iv been up and down with my emotions. But the truth is this doesnt change anything. Shes still the same little girl she always has been. She doesnt no what the results are or even give a crap for that matter. All she knows is that when mommys sad it makes her sad. So Im going to be happy and strong as I have been. Hermione lives in a perfect bubble. I was considering getting rid of this group if Im honest. You no what Im not perfect a lot of you say how wonderful and strong I am but the truth is we all go through shit life chucks so much at us all and we all just havr to deal with It in what ever way we can. I get sad I get angry I swear at times and I make mistakes like everyone its a learning curve for me too. Like my dad Dermot Hannon hannon says hermione is the lucky one really shes doesnt no all the ins and outs she doesnt feel our stress and heart ache she lives in the moment. And thats what I think we all need to learn to do. Looking at the bigger picture isnt always the best thing to do. Weather I have her for another 10 20 30 or even 50 yesrs Im just going to enjoy her every moment of her as she does us. Shes perfect and always will be.
Posted on: Wed, 25 Jun 2014 17:59:02 +0000