I hate to blow up everyones newsfeed with SMA posts all the time. - TopicsExpress

I hate to blow up everyones newsfeed with SMA posts all the time. But in this article she states that no one has even heard of it, and thats a problem. When doctors tell you everyday that they read about it in a medical journal once (Ive heard that way too much) thats not ok. Scarlet isnt nearly this bad yet, but its possible that she will one day. We cant know. So if bringing awareness to not just the disease, but the effects on the family is all I can do, then Ive made a difference.

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