I have recently joined a forum with others who live with Fibromyalgia and found this letter posted there. This letter will tell all those who dont know, the daily problems we are up against and how we feel, at least on many a day. It is not meant to be a whiny excuse for people to feel sorry for us! We dont want that, just a little belief would be nice. A LETTER FROM FIBROMYALGIA Dear Miserable Human Being, Hi, my name is Fibromyalgia, and Im an invisible chronic illness. I am now ‘velcroed’ to you for life. Others around you cant see me or hear me, but YOUR body feels me. I can attack you anywhere and anyway I please. I can cause severe pain, or if I am in a good mood, I can just cause you to ache all over. Remember when you and Energy ran around together and had fun? I took Energy from you and gave you Exhaustion. Just try to have fun now! I also took Good Sleep from you and in its place gave you Fibro Fog (a.k.a.)Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away too. You didnt ask for me. I chose you for various reasons: that virus you had that you never quite recovered from, or that car accident, or childbirth, the death of a loved one, or maybe it was those years of abuse and trauma. Well, anyway, Im here to stay! I hear youre going to see a doctor who can get rid of me. Im ‘ROFL’ (rolling on the floor laughing)! Just try! You will have to go to many, many doctors until you find one who can help you effectively. In fact, youll see many doctors who tell you ‘it’s all in your head’ (or some version of that). If you do find a doctor willing to treat this ‘non-disease’, you will be put on pain pills, sleeping pills, and energy pills. You will be told you are suffering from anxiety or depression, given a TENS unit, told if you just sleep and exercise properly, I will go away. Youll be told to think positively, poked, prodded, and most of all, you will not be taken seriously when you cry to the doctor how debilitating life is for you every single day! Your family, friends, and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that Im a debilitating disease. Some of them will say things like Oh, youre just having a bad day, or Well, remember, you cant expect to do the things you used to do 20 years ago, not hearing that you said 20 DAYS ago! Some will just start talking behind your back, while you slowly feel that you are losing your dignity, trying to make them understand, especially when you are in the middle of a conversation with a ‘normal’ person, and cant remember what you were going to say next! In closing, youve probably figured out that the ONLY place you will get any real support and understanding in dealing with me is with Other People With Fibromyalgia! They are the only ones that will understand your complaints of unrelenting pain, insomnia, fibro fog, the inability to perform the everyday tasks that ‘normal people’ take for granted. Remember, Im stuck to you like Velcro – and I expect well be together for the rest of your life. Have a nice day!! (ROFL), Fibromyalgia Author Unknown
Posted on: Thu, 17 Oct 2013 11:33:44 +0000
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