I may or may not have had a tiny meltdown last night. Maybe. One - TopicsExpress



          

I may or may not have had a tiny meltdown last night. Maybe. One might think that since we’re not Robin’s actual caregivers at the moment that things would be less stressful. And on the surface they are, but smoldering inside my head is a constant, ever-growing to-do list combined with an I-don’t-want-to-do list, mingled with a why-can’t-someone-else-do list, with a smattering of Phone Calls That I Dread Making therefore I procrastinate until the last possible moment, sprinkled with insurance and Medicaid HEADACHES (although we do have excellent insurance, for which I’m VERY thankful), often overpowered by an if-I-have-to-figure-out-ONE-MORE-THING I think I’ll SCREAM list. You should all come and play with me. It’ll be fun, I promise. (Just don’t ask Jim; he would lie and tell you otherwise.) But on a happy note, Robin improves daily. I wish I could remember to write down some of the things she says on the phone. I tell myself next time I’ll keep a pen handy, but obviously I don’t listen. Just like my kids sometimes. :) Our case manager told me in an email today that they continue to be very impressed with her phone skills when she’s calling around campus to let everyone know that the coffee shop is open on Wednesdays. I wish I could be there for that sometime. The CM asks her lots of questions when she calls, and Robin either answers them or says, “Hang on” while she finds out. She used to just say “I don’t know”. A lot. Robin asks us daily when she’s coming home. That’s getting harder and harder. She’s not upset, just curious. We just keep telling her to work hard and keep getting stronger, that she needs to let them help her get better and better. The other daily conversation is how much she misses AnnaPaige. Please pray that God will redeem the time they’re losing while they’re apart. One of my biggest stress factors has been worrying about what’s next after Timber Ridge. I was hopeful she would get 2-3 months there, but it looks like she may get much more than that. We’re told our insurance company is the best at working with them and that they often approve 4-5 months. And when they do stop, Medicaid will kick in. So as much as we miss her (so much it’s not even funny, as Robin says), we of course want her to have every advantage TR can give her. Mentally she’s leaps and bounds further than she was 2-3 months ago, and physically she’s made great gains as well. So last night I cried out to God, and today He sent encouragement through friends and an email from our case manager. Reminders that He hasnt forgotten where we live and what were up against. It may sound lame, and I’ve run out of ways to say it, but thank you. Really. You just don’t know. Why are you cast down, O my soul, and why are you in turmoil within me? Hope in God; for I shall again praise him, my salvation and my God. Psalm 43:5
Posted on: Fri, 09 Jan 2015 02:37:38 +0000

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