Jennie Spotilia published a partial analysis of the document focusing on four issues: what disease is being defined in the study; the degree to which ME/CFS experts will participate; the degree to which patients and other stakeholders car participate; the project timeline; and my personal opinion on the SOW. You can read my analysis here: occupycfs/2013/09/30/the-statement-of-work/ Regardless of whether you agree with her, we hope you will review the SOW and share your own analysis. She wants to hear the full spectrum of opinions in the patient, advocacy and scientific communities. This issue is way bigger than any individual or group. comments can be made at the link below. In her blog, there is a link of the Statement of work. thanks! PLEASE SHARE!
Posted on: Tue, 01 Oct 2013 03:36:48 +0000
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