John is 3 and suffers from Severe Congenital Neutropenia.. He - TopicsExpress

John is 3 and suffers from Severe Congenital Neutropenia.. He received a bone marrow transplant. 4/27/11. Since he as developed Graft Vs Host. Graft versus host disease (GvHD) is a condition that might occur after an allogeneic bone marrow transplant. In GvHD, the donated bone marrow or stem cells view the recipient’s body as foreign, and the donated cells/bone marrow attack the body. The Drs now know as well that he is Steroid dependent for his GVHD. Chop is planning to start doing photopheresis; on 7/8/13, This treatment will require us to be at Chop for 3-8 months for treatment 3 times a week . We will be staying at the Philadelphia Ronald McDonald House Or the Camden Nj house . It depends on witch has a room open . All Funds raised will help with expenses not covered by Johns Ins. gofundme/372oh4

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