Just wanted to let everyone know today has been an amazing day. Today is the first day with no seizures/major spasms. The 6 days of IV Steroids are finished, and it seems they have done their job. I still have at least 2 weeks of tablet steroids to take. I saw the doctor today and the EEG was not conclusive so we have scheduled a 72 hour one. In the meantime he prescribed me seizure medication. He confirmed my intuition regarding the Emergency Room doctor 100 percent. He was not educated regarding MS and his information was incorrect I am so happy I did not let him treat me as he wanted to. It is so important for those of us who have illness to know our bodies, even if we cant control them. It has been an overwhelming, terrifying week. I dont know when it will happen again and that if horrifying. To live in an unpredictable body that can literally render you immobile and speechless is horrifying. My only role at this time is to put aside my fear, rest in the peace that this time the worst has past (hopefully) and hope the next time it will pass as well. Thanks to my mom and dad for helping take care of the house and Jims family for their support. Thank you to Tatyana Claytor, Donna Vocelle, Donna Cadenhead-Macera Keith Cutting Gloria Cutting Amanda Ward Hackford, Dawn Leichtenberg West, Patti Carter & others who provided food for our family. Thank you to Leann Graefe for the food and much needed laughter. Cant wait for that glass of wine:) The thoughts and prayers of those close and far were greatly appreciated. No matter how immobile my body was the love, prayers and kindness that surrounded me kept my spirit alive and aware. God is good and I am blessed. It has been a very stressful week for my husband Jim Dixon. Nothing truly tests a marriage like a stubborn sick woman and a man that wants to fix her:) The stress on him has been unimaginable. Not knowing whether I was going to have a stroke, and the uncertainty that he will never again have the wife he once had. He had the weight of the world on his shoulders and he survived. Though I must admit a bit weary and exhausted. Again thank you for the prayers and kindness during this trying time. They are appreciated and we would love for them to continue. The road to recovery will still be a long one. My mind needs to find peace, my legs need to find firm ground, my speech needs to stay strong and most importantly my body needs rest. I am anxious to get back to work, clean my house and run and jump, but every time I get that urge I remember this... Be still before the LORD and wait patiently for him; Psalm 37:7a.
Posted on: Mon, 17 Nov 2014 03:00:50 +0000
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