Life with Rett Syndromes seems to get worse after the age of - TopicsExpress

Life with Rett Syndromes seems to get worse after the age of 21. Rett syndrome not only steals from our girls their chance to live normally, it also steal the families way if living some what normally. When our Rett angels turn 21, the somewhat normal way of life stops for everyone! There are no social programs for them anywhere that meets their medical needs. That means that one parent has to stay home from work. If you have a waiver program, they dont fill their needs either. Not having a social life for our girls, and also the parents, is just one thing that Rett syndrome steals from families, and just when they need it the most!

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