Merry Christmas Eve!!! I have been thinking about this post for a few days now and trying to put my thoughts into tangible sentences plus come up with enough energy to do it. I came home Friday evening and was pretty sure this week was going to fly by and it has been. It has been up and down as I am trying to recover from the last round of chemotherapy but regardless it has been so nice to be at home. It is impossible to express my gratitude in words for all of the love that surrounds my family and I, it is so humbling. I do not think I would have pulled off Christmas with out everyones help, my house looks amazing, there are presents under the tree, food in the fridge, etc. and I am so thankful! I am not looking forward to Friday but am going to enjoy every second between now and then and try not to think about what lies ahead. Im not going to lie, I am nervous, not scared.. (there is a difference.) My body is the weakest its ever been since this all began and I feel like I dont have enough time to recover from the last round before beginning the next. I guess its anticipation.. I know how tough its going to be, some times its nice to walk into something blindly I guess. I also want to thank everyone who has taken the time to send a card, package, message, text, etc. it truly means so much that you take the time to send me your encouragement and it brightens each and every one of my days. Thank you to everyone for researching different options for me, suggesting holistic care and what not, I do take the time to read everything that is sent to me and I run many things by my doctors to get their opinions. I am a very follow your heart kind of gal and with each thing that is presented to me I do just that along with research so point is I really appreciate the thoughts and effort from everyone to make sure I am doing every possible thing I could be doing to fight this. I believe in struggle we find beauty, I believe I am walking the exact path I was meant to walk and I believe that Christ my savior is with me always. It is such a blessing to be home to celebrate Christmas with my family, I wish my sister was here along with my aunts and uncles and cousins but I will take what I can get and plan on a bigger reunion next year. I hope everyone enjoys the holiday with family and friends, thank you again for keeping me in your thoughts and prayers, I appreciate every single one of them. Merry Christmas! Last thing, so many people ask about the type of cancer I have.. I was diagnosed with AML subtype M2 with a FLT3 mutation. I achieved remission after my first round of Induction chemo in May 2013 and remained in remission until 11/2104 so about a year and a half or so, I had a bone marrow transplant last December. My disease is currently active and showed resistance to my last round of Induction chemo (CLAG) I have to achieve remission before they can infuse more donor cells or do anything further as far as transplant options go. Friday I will begin another round of chemo stronger than the last in hopes of wiping out all leukemic cells, if I were to remain resistant to this next round there is not much that can be done although I have been told about a few centers that may be conducting clinical trials right now, I have not researched them yet. I think that is a decent summary.. alot of people send me things about tumorous cancers, I do not have a tumorous cancer, I have a blood cancer, that originates in the bone marrow.. love to all, xoxo
Posted on: Wed, 24 Dec 2014 21:32:57 +0000
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