Ok, I am going to finally update everyone on what is going on. This last hospital visit was a bit scary. I was rushed from Tyler hospital via ambulance to Houston Methodist. Thankfully, my sweet friends Traci Watts Standifer and Leslee Shilling Hart were there with me before I was shipped off. The precious EMT knew I was scared so he played Trivia Crack on my phone with me the entire 3 hour trip. My pre-transplant team kept in contact with me throughout the trip and were waiting on me when I got there! I barely remember the ride down. I guess my mind has somehow blocked out the trauma parts, thankfully. I was admitted to the 10th floor of Fondren building at Methodist to CCCU-Cardiac Critical Care Unit. Teeny, tiny room, all alone in wee hours of morning. My husband was in New Mexico with 2 days of work left and his co-workers sent him on his way home! He got to me Tuesday afternoon and never left my side except 1 night back to Tyler to get packed back up for work! Amazing man! I had a lot of medical mumbo jumbo going on I wont bore you with but the best part of the entire trip is that after 6 months of testing, I was officially placed on the transplant list as a status 2. They really wanted me to stay in the hospital until I got a transplant and be on the list as a 1A or 1B but after my favorite Dr. Torre came in from Monteray, Mexico, WE decided I could go on the list as a 2 with the understanding that I wont get a transplant at that status. It just gets me on the list so I start accruing time. Then, when the time comes, I will check back in to the hospital and get placed on a drip called Milrinone and continue more plasmapheresis while I stay in and wait on a heart. 3 weeks, 3 months, a year...no one knows but I would be a 1A or 1B so I would be a high priority. The key is to go in soon enough so I am sick enough for a transplant but not sick enough for a transplant...if that makes sense. This will be very difficult because I usually try riding it out at home until the last minute...these dang hard-headed genes my momma and daddy gave me! Anyway, my totally optimistic plan is end of May. Not undoable but highly unlikely. Ive only managed 2 months at a time at home! But, it does not hurt to set a goal! Santa brought us Jason Aldean and Kenny Chesney tix for concert at Cowboys Stadium on May 16th, so I want to be home for that! Anyway, if Im in the hospital, Ill need 2 volunteers to take my girls and their friends to this concert. I doubt I will find anyone to do that though, everyone is so busy.....bahahaha! Anyway, thats it in a nutshell. Im going to wrap up loose ends around our house, get all of my Is crossed and Ts dotted bc it would be too easy to do things the right way. I just want to make sure things are easy for someone to take care of while Im gone for so long. I cannot tell you how much it means to have so many people praying for me and checking on me and sending me mail and gift cards. I cannot begin to tell you how expensive it is....parking garage alone is outrageous but thanks to Karen B Hughes, we have that solved. Parking at her house while Chris is in town, then she will get him and take him to car when he needs to leave. I just want to brag on my husband, Christopher White, just a quick second. 3 days cooped up in CCU and 13 more in a 12x12 room with never more than 2 hours straight of sleep...he never, ever leaves my side. 24/7 with 2 people in the same tiny room, both scared, uncomfortable, tired, fussy....he never fusses. He listens to me fuss (ALOT this last time bc my catheter in my leg was painful). I would be lost without him. He eats my food from the menu with no salt added bc it gets so expensive to eat out 3 times a day for 2 weeks. I cant tell you how selfless this man is! I love him with every ounce of my enlarged heart. And my kids, they are troopers! The girls stay with their dad and he has been wonderful too. He drops everything and rearranges his schedule to take care of them full time when Im gone. My son keeps the house in order, mail checked, dogs fed, trash out, TV used, food eaten.... its so comforting to know hes got it all handled. My baby girls arent allowed to visit in the hospital except for special occasions. Its Just something I started doing years ago. Its no place for kids. They are always calling or texting and checking on me every day. I know they worry but they handle it so well. Im done rambling. I just wanted to fill in gaps on info. Once again, thank you all for everything you do for my family. I am one lucky gal to have such a strong support system, even with my mom and dad both having passed away, Ive got some amazing people in my life. I know my momma and daddy are watching over me daily! They make sure Ive got you guys to walk through this journey with me and for that, I am grateful! I loveee you all! Luckily, my immune system is depleted from the plasmapheresis so I cant hug any of you when I see you! Hs, ha, ha! So, dont even try it! And for those of you that are new to my page that dont know me personally, I say Ha ha ha because I do not like hugs! (And my immune system idol down on purpose so I wont reject a heart when the time comes! Just a little bit of FYI! Goodnight all and as my daddy always said, Glory to God!
Posted on: Tue, 30 Dec 2014 04:40:24 +0000
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