Rough day with Kaleb yesterday spent most of it in emerg. Came - TopicsExpress

Rough day with Kaleb yesterday spent most of it in emerg. Came home put him to bed Chris layed with him. I went back to work. Came home at three and he was still out cold. Had dinner and he was back in bed after a warm bath at 830. Just got him up for school and he just says Im not hungry my head hurts. (Side effects of the meds) extreme nausea and migraines. So anyhow I sat him down explained that his body is doing good on the meds they hes not having nearly as many seizures. My smart boy said but Im sick all the time I would rather have seizures then feel like this. My heart broke. How can I fix things if I have several referrals in for other doctors and there is such a big waiting list. How do I fix things if he sees a different person every time we go to emerg! So upsetting. Not sure where to do with all of this right now. The video was last week after four days of no seizures and not feeling sick at all.

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