So im just laying here ready to go to sleep and as I scroll thru fb it hits me that Jovan is actually terminal some day at anytime im gonna be forced to witness him take his last breath my baby, my son, the child I created I feel so much guilt for bringing him into this world and giving him Batten Disease I didnt even know I was a carrier to something like this if I would of known I would of never had kids not for my own selfish ways but for him I feel so bad for him I watched him grow and learn so many things and then I watched them be completely stripped from him and he like grew backwards back into a newborn, this disease is so sad as a mother you are supposed to protect your kids from harm and nurse them back to health when they are sick but im helpless as I watch this disease take over my babys life and poor gianni he is to young to understand but one thing he does understand is that he loves his brother I just hope this whole journey in our life we are forced to lead dont screw him up as much as it is me, I love my two boys with every breath in my body, Jovan has touched alot of you and brought yous into our life im so thankful for that, (that right there is the miracle that a sick child can unlock) we need you all, your support, your love and your strength to help us get thru this Journey Jovan was forced upon.. I wanna say thank you for being there when I feel weak thank you all for helping give me the strength to face another day and being a shoulder to cry on if I need, we truely love you all, Goodnight Friends ♥♥♥
Posted on: Sat, 12 Jul 2014 06:46:31 +0000
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