So we still dont have any real answers to anything....they did not - TopicsExpress

So we still dont have any real answers to anything....they did not do the genetic testing today...we have to go to a neurologist to have him order it so the insurance will approve it. We also have to go to a gastro doctor and nutritionist for the celiac stuff and we have to go to a cardiologist because if it is MD the heart muscles can be affected and that may show up pretty early. I hate waiting for all of this...I wish we could have an answer now...It kills me that hes having to go through all this.

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