Some very important information we have to keep with us at all times and just incase some of you was wondering and didnt know: Medical diagnosis and problems: *2 deletions in 7th chromosome 7p12.3p12.2 deletion *failure to thrive *epilepsy *gastroparesis *primary immunodefiency disease *constipation *reactive airway disease *asthma *hypotonia *allergies *very sensitive skin *malabsorption syndrome *SCAD *oral aversion *feet turn in *abnormal gait *he does wear SMOs *hyperglycemia *hypoglycemia MORNING MEDICATIONS: *keppra 2ml (100mg/ml) *periactin 5ml (2mg/ml) *prilosec 10mg capsul emptied into drink *eryped 1.5ml (200mg/5ml) *pulmicort -nebulizer (5mg/2ml) *lactulose 5ml (10gm/15ml) NOON MEDICATIONS: *eryped 1.5ml (200mg/5ml) *miralax 17gm (1 capful poured into drink) NIGHT MEDICATIONS: *keppra 2ml (100mg/ml) *zyrtec 2.5 ml(1mg/ml) *periactin 5ml (2mg/ml) *eryped 1.5ml (200mg/5ml) *lactulose 5ml (10gm/15ml) *singulair chew 1 tablet (4mg) *pulmicort -nebulizer (5mg/2ml) MEDICATIONS AS NEEDED *diazepam 5mg rectally *albuterol -nebulizer (2.5mg/3ml) *albuterol -inhaler (90mcg/puff) ALSO *finger pricks 3+times a day to check sugar *pediasure 36-40 oz per day * oxygen as needed FOODS FOR JACK TO AVOID: *foods high in sugar, fat, and/or fiber *whole wheat *whole grain *carbonated drinks *raw fruits and veggies *oatmeal *fruits with skin *veggies with skin including corn, peas, etc even if its cooked *beans *no orange juice, dried fruits, etc. *foods made with whole milk *meats like steak and roast FOODS OK FOR JACK TO EAT: *sugar free snacks *fat free or low fat foods and snacks (yogurt, etc.) *foods made with skim milk *white bread,white cereal, white rice, white pasta, etc *fruits in can or cooked and peeled *applesauce *purees *chicken, fish, lean beef SURGERIES AND IMPORTANT PROCEDURES: Ear tubes (Dec 2012) Sedated brain MRI Sedated spinal MRI endoscopies with biopsies (feb 2013, jan 2014) colonoscopies with biopsies (feb 2013, jan 2014) swallow study (april 2013) Gastric Emptying scan (feb 2014) EEG (april 2013, july 2013) *Primary Physician Dr. Gainey 120 Heywood Ave. Suite 200 Spartanburg SC 29302 864-573-9595 *Nutritionist/special needs/Dietician Dr. Dygo and Juliesu Regional Pediatrics 853 North Church St. Suite: 401 Spartanburg, South Carolina 29303 864-560-6287 *Gastroenterologist Donna Wade Greenville childrens hospital GHS patewood campus 200 patewood dr. Suite A140 Greenville, SC 29615 864-454-5125 *Allergy/Immunology Dr. Go Carolina Medical Affiliates 1330 Boiling Springs Rd. Suite 2500 Spartanburg, SC 29303 864-585-5433 *ENT Dr. Weir North Grove 1330 Boiling Springs Road Suite 1400, Spartanburg, SC (864) 582-2900 *Genetics Dr. Champaigne Greenwood Genetics Center 14 Edgewood Dr Greenville, SC (864) 250-7944 *Neurologist Dr. Foster Greenville Childrens Hospital Pediatric Neurology 200 Patewood Dr. 3rd floor Greenville SC 29615 864-454-5110 *Ophtamologist Dr. Varn 233 E Blackstock Rd, Spartanburg, SC 29301 (864) 587-9872 *Shriners Hospital orthopaedics 950 W Faris Rd Greenville, SC (864) 271-3444 *Orthopaedic surgeon Dr. Baird Steadman-Hawkins Clinic of the Carolinas 333 South Pine St. Spartanburg SC 29302 864-454-7422 *Therapy/Rehabilitation Spartanburg Regional Pediatric Rehabilitation Services 101 E. Wood St. Spartanburg SC 29303 864-560-2189 -Speech/Feeding Therapist *Megan* -Physical Therapist *Stephanie* -Occupational Therapist *Carlos*
Posted on: Wed, 28 May 2014 19:05:21 +0000