Sounds like they really want to put the gtube button & fundo in. They dont even want to attempt oral feeds or NG as he refluxes and aspirates so much. We need to keep his lungs healthy so doesnt stress out his heart. Big picture goal is to get him to grow and hold off on deffinative surgery until older. So if they decide this route is better than NJ then we wi have to do it. Breaks my heart though thinking about him going through another surgery. His heart surgeon needs to talk to general surgeon first before final decision is made and that wont be until Thursday so sit and wait again
Posted on: Tue, 12 Aug 2014 05:52:16 +0000
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